Insights From Bereaved Parents and Oncologists (NCT07663539) | Clinical Trial Compass
Not Yet RecruitingNot Applicable
Insights From Bereaved Parents and Oncologists
United States50 participantsStarted 2026-06
Plain-language summary
Investigators want to find better ways for doctors and families to talk about cancer and how uncertainty may affect a child's life.
Who can participate
Age range
18 Years
Sex
ALL
See this in plain English?
AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Inclusion Criteria:
* All participants must be ≥ 18 years of age or legally emancipated
* Parent Participants must have a child who:
* Received cancer care from a clinician at St. Jude, as documented in the electronic medical record, AND
* Died at least 6 months prior to enrollment, but no more than 24 months prior to enrollment.
* Oncologist participants at St. Jude must:
* Be listed as the primary oncologist as documented in the electronic medical record, AND
* Have the respective patient's parent agreement to participate in the study.
Exclusion Criteria:
* Declining, refusal, or unwillingness to participate
* Inability or unwillingness of research participant to give informed consent.
Questions worth asking your doctor
Bring these to your next appointment. They're a starting point for a shared conversation — not a sign you qualify or a recommendation to enrol.
1Based on my diagnosis and history, is this trial worth exploring for me — or is there a standard treatment we should try first?
2What does this trial's phase tell us about how much is already known about its safety and benefit?
3What would taking part actually involve for me — visits, tests, time, and travel?
4What are the known and possible risks or side effects I should weigh, and how would they be monitored?
5If this trial isn't the right fit, what other options or trials would you suggest I look into?
Generated to help you prepare — always confirm anything about your own eligibility and care with the study team and your doctor.
Questions for the trial coordinator
The trial coordinator is the person who runs the study day to day. These cover the practical side — logistics, costs, and what taking part would actually mean for your life. The study team confirms whether you meet the criteria; these are questions to ask, not a sign you qualify.
1What does taking part actually involve week to week — how many visits, where, and how long does each one take?
2What costs are covered by the study, and what might I have to pay for myself, including travel, parking, or time off work?
3What happens during screening, and what happens if the study team confirms I don't meet the criteria after those tests?
4Who pays for the scans, blood work, and other tests the trial requires — the study, my insurance, or me?
5How will being in the trial affect my regular care, and will my own doctor stay informed and involved?
6Can I leave the trial at any point if I change my mind, and what would happen to my care if I do?
A starting point for the conversation — always confirm anything about your own eligibility, costs, and care with the study team and your doctor.
What they're measuring
1
Bereaved parents of children with cancer and oncologists reflections on communication about prognostic uncertainty during the child's cancer treatment
Timeframe: Approximately 1-3 weeks after enrollment.