Not Yet RecruitingNot Applicable

Developing Resource Interventions for Healthcare Professionals and Patients to Improve Knowledge About Fertility in Primary Ciliary Dyskinesia

30 participantsStarted 2026-04-01

Plain-language summary

This project will involve working with people with PCD and medical professionals to develop resources that will help patients and the people providing their care to better understand fertility and pregnancy safety in people with this condition.

Who can participate

Age range18 Years

SexALL

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Inclusion criteria

✓. Aged 18 years or older
✓. 'Highly likely' or confirmed diagnosis of Primary Ciliary dyskinesia, or being a healthcare professional, or representative from a stakeholder group e.g. patient led charity
✓. Able to understand and willing to sign the informed participant consent prior to participation

Exclusion criteria

✕. Unwilling to participate in the study
✕. Not meeting inclusion criteria
✕. Unable to understand or unwilling to sign the informed participant consent prior to participation

What they're measuring

A resource for patients and a toolkit for medical professionals

Timeframe: Duration of study (up to 3 years)

Trial details

NCT IDNCT07531277

SponsorUniversity of Southampton

Sponsor typeOTHER

Study typeINTERVENTIONAL

Primary completion2029-03-31

Contact for this trial

Lydia Newman

+44 23 8120 6033 Lydia.newman@soton.ac.uk

View on ClinicalTrials.gov More Primary Ciliary Dyskinesia (PCD) trials