Psychosocial Burden of Epilepsy (NCT07449871) | Clinical Trial Compass
CompletedNot Applicable
Psychosocial Burden of Epilepsy
Turkey (Türkiye)90 participantsStarted 2026-02-01
Plain-language summary
This study aims to investigate the educational, occupational, and social challenges experienced by individuals with epilepsy using structured questionnaires developed by the research team. Despite advances in diagnosis and treatment, people with epilepsy may continue to face difficulties related to stigma, access to opportunities, and daily functioning. Participants will complete survey forms designed to assess barriers encountered in school, workplace, and social environments, as well as their perceptions and experiences related to living with epilepsy. The findings are expected to provide insight into unmet needs and inform strategies to improve support and quality of life for individuals with epilepsy.
Who can participate
Age range
18 Years
Sex
ALL
See this in plain English?
AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Inclusion Criteria:
* Inclusion Criteria
Adults aged 18 years or older
Clinical diagnosis of epilepsy confirmed by a neurologist
Able to understand and complete the questionnaire
Willing to provide informed consent
Exclusion Criteria:
* Severe cognitive impairment preventing reliable questionnaire completion
Acute medical or psychiatric condition interfering with participation
Inability to communicate effectively in the study language
Questions worth asking your doctor
Bring these to your next appointment. They're a starting point for a shared conversation — not a sign you qualify or a recommendation to enrol.
1Based on my diagnosis and history, is this trial worth exploring for me — or is there a standard treatment we should try first?
2What does this trial's phase tell us about how much is already known about its safety and benefit?
3What would taking part actually involve for me — visits, tests, time, and travel?
4What are the known and possible risks or side effects I should weigh, and how would they be monitored?
5If this trial isn't the right fit, what other options or trials would you suggest I look into?
Generated to help you prepare — always confirm anything about your own eligibility and care with the study team and your doctor.
Questions for the trial coordinator
The trial coordinator is the person who runs the study day to day. These cover the practical side — logistics, costs, and what taking part would actually mean for your life. The study team confirms whether you meet the criteria; these are questions to ask, not a sign you qualify.
1What does taking part actually involve week to week — how many visits, where, and how long does each one take?
2What costs are covered by the study, and what might I have to pay for myself, including travel, parking, or time off work?
3What happens during screening, and what happens if the study team confirms I don't meet the criteria after those tests?
4Who pays for the scans, blood work, and other tests the trial requires — the study, my insurance, or me?
5How will being in the trial affect my regular care, and will my own doctor stay informed and involved?
6Can I leave the trial at any point if I change my mind, and what would happen to my care if I do?
A starting point for the conversation — always confirm anything about your own eligibility, costs, and care with the study team and your doctor.
What they're measuring
1
Educational, occupational, and social difficulties
Timeframe: At study enrollment (single assessment)