The aim of this observational study is to define the behavioural and cardiovascular risk factor profiles of patients with genetic aortopathies. The main questions it aims to answer are: * How do the interconnections between lifestyle, stress, psychological condition, perception of illness, and state of health influence each other in this population? * Beyond traditional risk factors, additional emerging factors should be considered, including pregnancy-related complications, sedentary lifestyle, early menopause and depression. The interplay between eating disorders, lifestyle factors and autoimmune or inflammatory bowel diseases remains poorly understood.
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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Journey to diagnosis
Timeframe: 15 months
Quality of life, functional health and well-being
Timeframe: 15 months
Awareness and self-esteem, acceptance of the condition
Timeframe: 15 months
psychological and physical well-being
Timeframe: 15 months