RecruitingNot Applicable

A Qualitative Study Investigating the Lived Experiences and Impact of Reproductive Issues in Adults With Primary Ciliary Dyskinesia

United Kingdom30 participantsStarted 2025-09-02

Plain-language summary

Study involving undertaking research interviews with adults who have primary ciliary dyskinesia in the UK about their views and experiences of fertility, pregnancy and parenthood

Who can participate

Age range18 Years

SexALL

See this in plain English?

AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.

Inclusion Criteria: * Lives in United Kingdom * 'likely' or 'confirmed' diagnosis of PCD * able and willing to sign the consent form Exclusion Criteria: * unwilling to participate in the study * not meeting inclusion criteria

What they're measuring

Qualitative description of views and experiences of participants

Timeframe: Explored during study interview (day 1)

Trial details

NCT IDNCT07357558

SponsorUniversity Hospital Southampton NHS Foundation Trust

Sponsor typeOTHER

Study typeOBSERVATIONAL

Primary completion2026-07-31

Contact for this trial

Lydia Newman

02381206033 Lydia.newman@soton.ac.uk

View on ClinicalTrials.gov More Primary Ciliary Dyskinesia (PCD) trials