The CRxDpeer intervention, delivered by a trained peer navigator, in practice called a "peer mentor", includes three evidence-based components: (a) focused education about common social (e.g., food and housing insecurity) and caregiving (e.g., respite and end of life care) needs, (b) activation of personalized community resource information for social and caregiving needs through delivery of a resource list (HealtheRx) at the baseline encounter and coaching on how to communicate with service providers, coordinate services and manage social support (e.g., connect with their peer navigator, reach out to friends or relatives for support, identify support groups, etc.) and (c) ongoing navigation-focused support meant to boost the baseline intervention, including a series of proactive text messages over 12 months. During this time, the subject can respond to and communicate with the peer navigator for ongoing support.
Who can participate
Age range
18 Years
Sex
ALL
See this in plain English?
AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Inclusion Criteria:
* Self-identifies as a caregiver of a home-dwelling person with Alzheimer's disease or related dementias (ADRD)
* Resides in the target geographic region of the study
* Has access to a cell phone and agrees to receive text messages from the study
* Has an email address that they can receive emails from
* Individuals under the age of 18 who are emancipated minors in the state of Illinois and a caregiver of a person with dementia
Exclusion Criteria:
* Minors who are not emancipated in the state of Illinois.
* Previously participated in the intervention arm of the CommunityRx-Dementia clinical trial
Questions worth asking your doctor
Bring these to your next appointment. They're a starting point for a shared conversation — not a sign you qualify or a recommendation to enrol.
1This trial focuses on helping caregivers of people with dementia find community resources and connect with peer navigators — given our specific situation, does my doctor think this kind of social support program would be a meaningful addition to our current care plan?
2The trial is measuring caregiver loneliness at 6 months and confidence in finding end-of-life and advance care planning resources at 12 months — how does my doctor feel about us starting to address advance care planning now, and is a structured program like this one a good way to approach that conversation?
3Since this trial isn't recruiting yet, how long might we realistically wait before it opens, and is there anything similar already available to us in the meantime — like existing caregiver support groups or community health worker programs?
4This study is listed as Phase NA, which means it's more of a behavioral or social intervention than a drug trial — can my doctor explain what that means for what's already known about safety and whether programs like this have shown benefit in similar caregiver populations?
5Because caregiver burden, anxiety, stress, and depression are all listed as areas this trial is looking at, should my doctor or a social worker screen me for any of these right now, regardless of whether I ever join this study?
Generated to help you prepare — always confirm anything about your own eligibility and care with the study team and your doctor.
Questions for the trial coordinator
The trial coordinator is the person who runs the study day to day. These cover the practical side — logistics, costs, and what taking part would actually mean for your life. The study team confirms whether you meet the criteria; these are questions to ask, not a sign you qualify.
1What does taking part actually involve week to week — how many visits, where, and how long does each one take?
2What costs are covered by the study, and what might I have to pay for myself, including travel, parking, or time off work?
3What happens during screening, and what happens if the study team confirms I don't meet the criteria after those tests?
4Who pays for the scans, blood work, and other tests the trial requires — the study, my insurance, or me?
5How will being in the trial affect my regular care, and will my own doctor stay informed and involved?
6Can I leave the trial at any point if I change my mind, and what would happen to my care if I do?
A starting point for the conversation — always confirm anything about your own eligibility, costs, and care with the study team and your doctor.
What they're measuring
1
Caregiver loneliness at 6 months
Timeframe: 6 months
2
Caregiver's self-efficacy for finding end of life/advance care planning resources for the person with dementia at 12 months