This is a single-centre, cross-sectional observational study aiming to assess the psychological burden, quality of life, and perceived barriers to care in patients with von Hippel-Lindau syndrome (VHL). Data will be collected through an anonymous online questionnaire, specifically designed for the study and administered via Google Forms.
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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Completion of a self- administered questionnaire
Timeframe: Single time point (approximately 25-30minutes).