The goal of this is to validate the Patient-Reported Outcomes Measurement Information System (PROMIS) in sarcoma patients undergoing surgery, and to evaluate a novel smartphone app for collecting mobility data. The goals of the study include to: 1. Validate PROMIS as a patient outcome measure in sarcoma 2. Assess the effectiveness of a novel app for administering questionnaires and collecting mobility metrics 3. Compare PROMIS scores and mobility metrics to better evaluate recovery trajectories after surgery Participants will complete PROMIS questionnaires at regularly scheduled intervals using the smartphone app. Questionnaires will be completed pre-operatively and at 6 weeks, 12 weeks, 6 months, and 12 months post-operatively. Additionally, the app will passively track mobility metrics such as daily step count, stairs climbed, and gait parameters to compare with PROMIS scores.
Age range
18 Years
Sex
ALL
See this in plain English?
AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Bring these to your next appointment. They're a starting point for a shared conversation — not a sign you qualify or a recommendation to enrol.
Generated to help you prepare — always confirm anything about your own eligibility and care with the study team and your doctor.
The trial coordinator is the person who runs the study day to day. These cover the practical side — logistics, costs, and what taking part would actually mean for your life. The study team confirms whether you meet the criteria; these are questions to ask, not a sign you qualify.
A starting point for the conversation — always confirm anything about your own eligibility, costs, and care with the study team and your doctor.
Step count
Timeframe: From enrolment to one year post-operative
Distance travelled
Timeframe: From enrolment to 1 year post-operative
Flights of stairs climbed
Timeframe: From enrolment to 1 year post-operative
Gait asymmetry
Timeframe: From enrolment to 1 year post-operative
Distinct activity periods
Timeframe: From enrolment to 1 year post-operative
Total time active
Timeframe: From enrolment to 1 year post-operative
PROMIS Global Health
Timeframe: From enrolment to 1 year post-operative
PROMIS Self Efficacy
Timeframe: From enrolment to 1 year post-operative
PROMIS Pain Interference
Timeframe: From enrolment to 1 year post-operative
PROMIS Physical Function
Timeframe: From enrolment to 1 year post-operative
PROMIS Upper Extremity Function
Timeframe: From enrolment to 1 year post-operative
Toronto Extremity Salvage Score Lower Extremity
Timeframe: From enrolment to 1 year post-operative
Toronto Extremity Salvage Score Upper Extremity
Timeframe: From enrolment to 1 year post-operative
Maximal oxygen consumption (VO2 max)
Timeframe: From enrolment to 1 year post-operative
Heart rate
Timeframe: From enrolment to 1 year post-operative
Heart rate variability
Timeframe: From enrolment to 1 year post-operative