Designing Care Management for Hospice Transitions for Persons Living With Advanced Dementia

Bring these to your next appointment. They're a starting point for a shared conversation — not a sign you qualify or a recommendation to enrol.

1. 1Since this trial is focused on testing whether a new care management checklist is even feasible to use — rather than testing a treatment — would my loved one's day-to-day dementia care actually change, or is this more about improving how the care team organizes the hospice transition process?
2. 2This study is specifically about transitions into hospice care for people with advanced dementia — can you help me understand where my loved one currently is in their disease progression, and whether a hospice transition is something we should be actively considering right now?
3. 3The trial isn't recruiting yet, so if we're interested, how long might we realistically wait before it opens, and in the meantime what does the current standard process look like for moving someone with advanced dementia into hospice care?
4. 4Since this is a Phase N/A feasibility study, it sounds like the goal is to test whether this checklist approach works in practice rather than to prove it improves patient outcomes — does that mean there's less certainty about whether it would directly benefit my loved one compared to what's already available?
5. 5Are there existing care management tools or hospice transition programs already in use at this facility that we could access now, without waiting for this trial to open?

Generated to help you prepare — always confirm anything about your own eligibility and care with the study team and your doctor.