SITRAME syndrome is a recently described disease. In the absence of epidemiological data on SITRAME syndrome in France, the National Reference Center for Autoinflammatory Diseases proposes coordinating a database to collect both retrospective and prospective cases of this rare disease. Currently, there are no available data on the epidemiology or treatment of SITRAME syndrome in France or globally. The importance of this research is to provide an overview of demographic, etiological, and disease progression data for patients with SITRAME syndrome in France. This will allow the establishment of quantitative data on the morbidity and mortality of this rare disease.
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Description of the sexe at the diagnosis of the disease in order to describe the clinical characteristics of patients followed for SITRAME syndrome
Timeframe: Day 0- Baseline
Description of the age at the diagnosis of the disease
Timeframe: Day 0- Baseline
Description of cardiovascular co-morbidity
Timeframe: Day 0- Baseline
Description of presence of an allergical context
Timeframe: Day 0- Baseline
Description of the different therapeutic lines
Timeframe: Year 15
Description of the age at death
Timeframe: Day 0- Baseline