RecruitingNot Applicable

Natural History of Oculo-Pharyngeal Muscular Dystrophy (OPMD) - Israel National OPMD Registry

Israel300 participantsStarted 2022-02-01

Plain-language summary

The goal of this open prospective multi-disciplinary observational study of patients with OPMD at various stages of clinical manifestations is to explore the natural history of the disease in the Israeli population.

Who can participate

Age range18 Years

SexALL

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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.

Inclusion Criteria: * Patients with clinical diagnosis of OPMD or patients with signs /symptoms suggestive of OPMD Exclusion Criteria: * Age \<18 years and Pregnancy

What they're measuring

Severity of muscle strength decline over time

Timeframe: 1 year

Penetration/Aspiration Scale

Timeframe: 1 year

Upper Margin Reflex Distance

Timeframe: 1 year

Lower Margin Reflex Distance

Timeframe: 1 year

Trial details

NCT IDNCT07146256

SponsorSheba Medical Center

Sponsor typeOTHER_GOV

Study typeOBSERVATIONAL

Primary completion2030-01

View on ClinicalTrials.gov More Oculopharyngeal Muscular Dystrophy (OPMD) trials