HOPE AND ACCEPTANCE AT THE END OF LIFE - IMPACT OF SPIRITUALITY ON PALLIATIVE CARE PATIENTS (NCT07113899) | Clinical Trial Compass
CompletedNot Applicable
HOPE AND ACCEPTANCE AT THE END OF LIFE - IMPACT OF SPIRITUALITY ON PALLIATIVE CARE PATIENTS
Portugal20 participantsStarted 2025-01-01
Plain-language summary
This study aims to evaluate the hope and acceptance among patients visited by the Equipa Comunitária de Suporte em Cuidados Paliativos do Baixo Mondego. This study is a prospective longitudinal research study. The sample consisted of two groups: the Intervention Group, which included patients from the network of the Equipa Comunitária de Suporte em Cuidados Paliativos do Baixo Mondego (ECSCP-BM), and the Control Group, with selected patients from Unidade de Saúde Familiar Nautilus e Unidade de Saúde Familiar Coimbra Centro, with serious illness, comorbidities, and a poor prognosis. The patients chosen from ECSCP-BM were made up only of new patients referred to the team without any prior home consultations. The first questionnaire application took place during the first visit, and the second one was administered fourteen days later. The Primary Health Care patients were selected by invitation, and the questionnaire was administered. It included sociodemographic data, clinical data, the Herth Hope Index - PT and open questions.
Who can participate
Age range
18 Years
Sex
ALL
See this in plain English?
AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Inclusion Criteria:
* new referrals made by the family doctor to the community palliative care support team (which integrated the patient into the palliative care team network for the first time) - for the intervention group
* patients registered at the Nautilus Family Health Unit or Coimbra Centro Family Health Unit with serious pathology, comorbidities and reserved prognosis - for the control group
Exclusion Criteria:
* age under 18
* pregnancy
* altered state of consciousness or dementia
* low level of education
Questions worth asking your doctor
Bring these to your next appointment. They're a starting point for a shared conversation — not a sign you qualify or a recommendation to enrol.
1Based on my diagnosis and history, is this trial worth exploring for me — or is there a standard treatment we should try first?
2What does this trial's phase tell us about how much is already known about its safety and benefit?
3What would taking part actually involve for me — visits, tests, time, and travel?
4What are the known and possible risks or side effects I should weigh, and how would they be monitored?
5If this trial isn't the right fit, what other options or trials would you suggest I look into?
Generated to help you prepare — always confirm anything about your own eligibility and care with the study team and your doctor.
Questions for the trial coordinator
The trial coordinator is the person who runs the study day to day. These cover the practical side — logistics, costs, and what taking part would actually mean for your life. The study team confirms whether you meet the criteria; these are questions to ask, not a sign you qualify.
1What does taking part actually involve week to week — how many visits, where, and how long does each one take?
2What costs are covered by the study, and what might I have to pay for myself, including travel, parking, or time off work?
3What happens during screening, and what happens if the study team confirms I don't meet the criteria after those tests?
4Who pays for the scans, blood work, and other tests the trial requires — the study, my insurance, or me?
5How will being in the trial affect my regular care, and will my own doctor stay informed and involved?
6Can I leave the trial at any point if I change my mind, and what would happen to my care if I do?
A starting point for the conversation — always confirm anything about your own eligibility, costs, and care with the study team and your doctor.