The purpose of the study is to see if our education materials help people at risk for Lynch syndrome decide about seeking genetic services. Untested relatives of patients with Lynch syndrome will be recruited to complete a baseline survey and will be randomized to receive either the an information letter or an information letter plus a booklet. Two follow-up surveys will be administered over the span of 6 months. Participants will also be invited to join an optional exit interview to provide feedback.
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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Feasibility (recruitment and retention rates, completeness of assessment data)
Timeframe: (recruitment) baseline, 1-month and 6-months post-randomization
Use and attitudes towards the education materials
Timeframe: 1-month post-randomization (may also include in 6-month post-randomization
Scheduling and attendance of pre-test genetic counseling and/or genetic testing
Timeframe: 6-months post-randomization