Individuals with multiple myeloma (MM) are vulnerable because of the effects of systemic organ damage and the side effects of treatment. A decline in patients' health-related quality of life (HRQoL) and a compromised participation in everyday life was reported. The diagnosis of MM negatively affects the principal informal caregiver. This is a concurrent exploratory mixed methods study that involves the use of a quantitative and a qualitative approach. For the quantitative study, aims are to describe any possible relation between the identified factors with HRQoL and participation in individuals with MM and with reactions to caring and self-efficacy of caregivers. For the qualitative study, aims are to investigate "how" and "why" the disease impacts the daily life of individuals with MM and their caregivers. The final analyses will be based on the comparison of the results of the quantitative phase and the results of the qualitative phase.
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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Health related quality of life (HRQoL)
Timeframe: 24 months
Health related quality of life (HRQoL)
Timeframe: 24 months
Participation
Timeframe: 24 months
Reactions to caring
Timeframe: 24 months
5. Self-efficacy
Timeframe: 24 months
Open-ended questions of a semi-structured interview that was written by researchers and clinicians and with the support of expert individuals with MM and their caregivers to collect the disease-related experiences and its consequences on daily life
Timeframe: 24 months