The goal of this Realist Evaluation is to evaluate the implementation of pilot projects for transmural care in chronically ill children. The main question it aims to answer is: To what extent and how do the pilot projects for transmural care for chronically ill children provide an answer to the quintuple aim? Participants will * Complete questionnaires at three timepoints * Participate in focus group interviews
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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Quality of Life
Timeframe: Baseline, 6 months and through study completion, up to 18 months maximum.
Parental Quality of Life
Timeframe: Baseline, 6 months and through study completion, up to 18 months maximum.
Caregiver burden
Timeframe: Baseline, 6 months and through study completion, up to 18 months maximum.
Diagnosis
Timeframe: Through study completion, up to 18 months maximum.
Length of stay in the hospital
Timeframe: Through study completion, up to 18 months maximum.
Length of stay in transmural care
Timeframe: Through study completion, up to 18 months maximum.
Transmural care at school
Timeframe: Through study completion, up to 18 months maximum.
Adverse events
Timeframe: Continuous data collection, until study completion (18 months)
Patient experience
Timeframe: Baseline, 6 months and through study completion, up to 18 months maximum.
Parental Empowerment
Timeframe: Baseline, 6 months and through study completion, up to 18 months maximum.
Job Satisfaction
Timeframe: Baseline, 6 months and through study completion, up to 18 months maximum.
Work-related stress
Timeframe: Baseline, 6 months and through study completion, up to 18 months maximum .
Quality of Work
Timeframe: Baseline, 6 months and through study completion, up to 18 months maximum.
Competence and Training
Timeframe: Baseline, 6 months and through study completion, up to 18 months maximum.
Socio-demographic variables
Timeframe: Baseline, 6 months and through study completion, up to 18 months maximum.
Socio-economic variables
Timeframe: Baseline, 6 months and through study completion, up to 18 months maximum.