The goal of this Realist Evaluation is to evaluate the implementation of pilot projects for transmural care in chronically ill children. The main question it aims to answer is: To what extent and how do the pilot projects for transmural care for chronically ill children provide an answer to the quintuple aim? Participants will * Complete questionnaires at three timepoints * Participate in focus group interviews
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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Bring these to your next appointment. They're a starting point for a shared conversation — not a sign you qualify or a recommendation to enrol.
Generated to help you prepare — always confirm anything about your own eligibility and care with the study team and your doctor.
The trial coordinator is the person who runs the study day to day. These cover the practical side — logistics, costs, and what taking part would actually mean for your life. The study team confirms whether you meet the criteria; these are questions to ask, not a sign you qualify.
A starting point for the conversation — always confirm anything about your own eligibility, costs, and care with the study team and your doctor.
Quality of Life
Timeframe: Baseline, 6 months and through study completion, up to 18 months maximum.
Parental Quality of Life
Timeframe: Baseline, 6 months and through study completion, up to 18 months maximum.
Caregiver burden
Timeframe: Baseline, 6 months and through study completion, up to 18 months maximum.
Diagnosis
Timeframe: Through study completion, up to 18 months maximum.
Length of stay in the hospital
Timeframe: Through study completion, up to 18 months maximum.
Length of stay in transmural care
Timeframe: Through study completion, up to 18 months maximum.
Transmural care at school
Timeframe: Through study completion, up to 18 months maximum.
Adverse events
Timeframe: Continuous data collection, until study completion (18 months)
Patient experience
Timeframe: Baseline, 6 months and through study completion, up to 18 months maximum.
Parental Empowerment
Timeframe: Baseline, 6 months and through study completion, up to 18 months maximum.
Job Satisfaction
Timeframe: Baseline, 6 months and through study completion, up to 18 months maximum.
Work-related stress
Timeframe: Baseline, 6 months and through study completion, up to 18 months maximum .
Quality of Work
Timeframe: Baseline, 6 months and through study completion, up to 18 months maximum.
Competence and Training
Timeframe: Baseline, 6 months and through study completion, up to 18 months maximum.
Socio-demographic variables
Timeframe: Baseline, 6 months and through study completion, up to 18 months maximum.
Socio-economic variables
Timeframe: Baseline, 6 months and through study completion, up to 18 months maximum.