This is a prospective interventional study of patients with Friedreich's Ataxia that receive respiratory strength training for a period of 12 weeks with two research visits at the beginning and at the end of the study period. Visits include swallowing evaluation with fiberoptic endoscopic evaluation of swallowing, pulmonary function testing, surface electromyography and patient surveys.
Age range
18 Years – 65 Years
Sex
ALL
See this in plain English?
AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Bring these to your next appointment. They're a starting point for a shared conversation — not a sign you qualify or a recommendation to enrol.
Generated to help you prepare — always confirm anything about your own eligibility and care with the study team and your doctor.
The trial coordinator is the person who runs the study day to day. These cover the practical side — logistics, costs, and what taking part would actually mean for your life. The study team confirms whether you meet the criteria; these are questions to ask, not a sign you qualify.
A starting point for the conversation — always confirm anything about your own eligibility, costs, and care with the study team and your doctor.
Force Vital Capacity
Timeframe: Through study completion (4 months)
Maximal Inspiratory Pressure (MIP)
Timeframe: Through study completion (4 months)
Maximal Expiratory Pressure (MEP)
Timeframe: Through study completion (4 months)
Sniff Nasal Inspiratory Pressure (SNIP)
Timeframe: Through study completion (4 months)
Swallowing
Timeframe: Through study completion (4 months)
Surface Electromyography (sEMG)
Timeframe: Through study completion (4 months)
Diaphragm Ultrasound
Timeframe: Through study completion (4 months)