The Family Caregiver Survey is a one-time, 30-minute, online survey for people living with and caring for a family member with dementia. The goal of this research is to explore the needs of family caregivers, specifically when it comes to managing swallowing difficulties (dysphagia).
Age range
18 Years
Sex
ALL
See this in plain English?
AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Bring these to your next appointment. They're a starting point for a shared conversation — not a sign you qualify or a recommendation to enrol.
Generated to help you prepare — always confirm anything about your own eligibility and care with the study team and your doctor.
The trial coordinator is the person who runs the study day to day. These cover the practical side — logistics, costs, and what taking part would actually mean for your life. The study team confirms whether you meet the criteria; these are questions to ask, not a sign you qualify.
A starting point for the conversation — always confirm anything about your own eligibility, costs, and care with the study team and your doctor.
Demographic Information
Timeframe: Baseline
Eight-item Informant Interview to Differentiate Aging and Dementia (AD8)
Timeframe: Baseline
Global Deterioration Scale (GDS)
Timeframe: Baseline
International Dysphagia Diet Standardisation Initiative Functional Diet Scale (IDDSI-FDS)
Timeframe: Baseline
Zarit Burden Interview
Timeframe: Baseline
Caregiver Analysis of Reported Experiences with Swallowing (CARES)
Timeframe: Baseline
Caregiving Competence Scale
Timeframe: Baseline
Dysphagia-Related Knowledge Questionnaire
Timeframe: Baseline
Preparedness for Caregiving Scale
Timeframe: Baseline
Multidimensional Scale of Perceived Social Support (MSPSS)
Timeframe: Baseline
Eating Assessment Tool 10 (EAT-10)
Timeframe: Baseline