Engaging families in patient care during serious illness can enhance care quality, reduce social isolation, boost satisfaction, and lower healthcare costs. However, active involvement of family caregivers remains limited because there are no evidence-based tools to guide clinicians on how to include them effectively. This study will test and refine previously developed point-of-care application, Family Room, and determine its effectiveness by comparison with a control group. A series of surveys will be used to evaluate caregiver well-being, engagement and satisfaction.
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Caregiver Engagement - Practical Aspects: FAMily Engagement (FAME) Tool
Timeframe: At study enrollment and within 48 hours of patient participant ICU discharge
Daily Activity: Family Room Application
Timeframe: Daily from enrollment until patient participant ICU discharge, an average of 3 weeks
Daily Patient Symptoms - Severity of Illness: Acute Physiology and Chronic Health Evaluation (Apache II)
Timeframe: Daily from enrollment until patient participant ICU discharge, an average of 3 weeks
Daily Patient Symptoms: Presence of Lines, Tubes and Equipment
Timeframe: Daily from enrollment until patient participant ICU discharge, an average of 3 weeks
Daily Patient Symptoms: Glasgow Coma Scale (GCS)
Timeframe: Daily from enrollment until patient participant ICU discharge, an average of 3 weeks
Daily Patient Symptoms: Pain
Timeframe: Daily from enrollment until patient participant ICU discharge, an average of 3 weeks
Daily Patient Symptoms: Richmond Agitation-Sedation Scale (RASS)
Timeframe: Daily from enrollment until patient participant ICU discharge, an average of 3 weeks
Daily Patient Symptoms: Confusion Assessment Method for the ICU
Timeframe: Daily from enrollment until patient participant ICU discharge, an average of 3 weeks