Engaging families in patient care during serious illness can enhance care quality, reduce social isolation, boost satisfaction, and lower healthcare costs. However, active involvement of family caregivers remains limited because there are no evidence-based tools to guide clinicians on how to include them effectively. This study will test and refine previously developed point-of-care application, Family Room, and determine its effectiveness by comparison with a control group. A series of surveys will be used to evaluate caregiver well-being, engagement and satisfaction.
Age range
19 Years
Sex
ALL
See this in plain English?
AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Bring these to your next appointment. They're a starting point for a shared conversation — not a sign you qualify or a recommendation to enrol.
Generated to help you prepare — always confirm anything about your own eligibility and care with the study team and your doctor.
The trial coordinator is the person who runs the study day to day. These cover the practical side — logistics, costs, and what taking part would actually mean for your life. The study team confirms whether you meet the criteria; these are questions to ask, not a sign you qualify.
A starting point for the conversation — always confirm anything about your own eligibility, costs, and care with the study team and your doctor.
Caregiver Engagement - Practical Aspects: FAMily Engagement (FAME) Tool
Timeframe: At study enrollment and within 48 hours of patient participant ICU discharge
Daily Activity: Family Room Application
Timeframe: Daily from enrollment until patient participant ICU discharge, an average of 3 weeks
Daily Patient Symptoms - Severity of Illness: Acute Physiology and Chronic Health Evaluation (Apache II)
Timeframe: Daily from enrollment until patient participant ICU discharge, an average of 3 weeks
Daily Patient Symptoms: Presence of Lines, Tubes and Equipment
Timeframe: Daily from enrollment until patient participant ICU discharge, an average of 3 weeks
Daily Patient Symptoms: Glasgow Coma Scale (GCS)
Timeframe: Daily from enrollment until patient participant ICU discharge, an average of 3 weeks
Daily Patient Symptoms: Pain
Timeframe: Daily from enrollment until patient participant ICU discharge, an average of 3 weeks
Daily Patient Symptoms: Richmond Agitation-Sedation Scale (RASS)
Timeframe: Daily from enrollment until patient participant ICU discharge, an average of 3 weeks
Daily Patient Symptoms: Confusion Assessment Method for the ICU
Timeframe: Daily from enrollment until patient participant ICU discharge, an average of 3 weeks