Palliative care aims to improve the quality of life for patients and families who are affected life-threatening, incurable disease. The care should be person-centred, but it is not entirely clear how this is best achieved. The Institute for Palliative Care, Lund, has developed the Swedish Palliative Care Guide (S-PCG) which support for a person-centred approach throughout the palliative care process. The aim of this study is to improve palliative care for people living at nursing homes, including people with dementia and cognitive impairment, this will be achieved by providing support for health care staff working with this group of patients, investigating evidence for a palliative care the support tool, the Swedish Palliative Care Guide (S-PCG) part 2, and integrating the palliative care approach earlier in the disease trajectory, to improve the quality of care for this patient group. The research questions will be explored from the perspective of the patient, the family, and the staff.
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To which degree the patients and their families feel informed about the situation of the patient.
Timeframe: Data will be collected through study completion, an average of 2 years, data will be collected only on time per patient.
To what degree the patients and their families feel secure about the future care that the patient will receive.
Timeframe: Data will be collected through study completion, an average of 2 years, data will be collected only on time per patient.