CompletedNot Applicable

Project AWARE 2.0 to Improve Awareness, Willingness and Ability for Research and Enrollment in Clinical Research

United States131 participantsStarted 2024-04-10

Plain-language summary

The Project AWARE 2.0 Survey is intended to gain knowledge about the feelings, attitudes, and beliefs of HD family members, care partners and others affected by HD towards the way drug trials and observational studies are communicated and conducted.

Who can participate

Age range18 Years

SexALL

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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.

Inclusion Criteria: * Participants must either have HD or be at risk for having HD * Participants must be 18 years of age or older * Participants must live in the United States * Inclusion of participants will not be based on race, gender, or ethnicity. Exclusion Criteria: \-

What they're measuring

Examine awareness

Timeframe: December 2024

Provide the HD research community with the insight.

Timeframe: December 2024

Trial details

NCT IDNCT06343220

SponsorHuntington Study Group

Sponsor typeNETWORK

Study typeOBSERVATIONAL

Primary completion2025-12-22

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