Long-term Study to Evaluate Safety and Tolerability of Valbenazine in Participants With Chorea Associated With Huntington Disease in Canada

Bring these to your next appointment. They're a starting point for a shared conversation — not a sign you qualify or a recommendation to enrol.

1. 1Since this is a long-term safety study focused on tracking adverse events in people with Huntington's disease-related chorea, what kinds of side effects have come up with valbenazine so far, and how might those affect someone at my stage of the disease?
2. 2This trial is enrolling by invitation only in Canada — am I or my loved one the kind of patient who might be considered for an invitation, and what would need to be true about my situation to be eligible?
3. 3Because the main thing being measured here is how many participants experience treatment-related side effects over the long term, does that mean there's still uncertainty about the safety profile of valbenazine, and how does that compare to already-approved options for Huntington's chorea?
4. 4What does committing to a long-term study actually look like in practice — how often would I need to come in, and is that realistic given where we are with managing the disease day to day?
5. 5Is there a standard treatment for Huntington's-related chorea that I should consider first before thinking about a research study like this one, or does this trial fill a gap that existing treatments don't address?

Generated to help you prepare — always confirm anything about your own eligibility and care with the study team and your doctor.