Pilot Testing of a Co-adapted Group Programme for Parents/Carers of Children With Complex Neurodisability

Parents and carers: Inclusion Criteria: * Care for a child (\<5 years) with a complex neurodisability\* * Have received a diagnosis for their child, which has been disclosed to them, even this is a diagnosis such as SWAN (Syndrome Without A Name) * Reside in the boroughs of Newham or Tower Hamlets, East London * ≥18 years of age. Exclusion Criteria: * Have a child with a developmental disability where there are no functional physical impairments as part of their complex needs. For example, children diagnosed with Autism Spectrum Disorder, Attention Deficit Hyperactivity Disorder, intellectual impairments will be excluded unless they have a functional physical impairment with a neurological cause too. * Have a child with a progressive neurological condition such as Duchenne's Muscular Dystrophy. * Have a child with a structural physical impairment not caused by a neurological event or neurological difficulties. For example, children born with a limb difference or a child with hearing loss. * Do not have capacity to consent * Do not meet the inclusion criteria as specified above * There are no exclusions based on language, as interpreting/translating services will be offered. Parent Facilitator: Inclusion Criteria: * Parents/carer of children with complex neurodisability who are identified through other services as potentially being able to facilitate a group as an 'expert parent' * Prior experience in training or using participatory approaches - not essential Exclusion…