CompletedNot Applicable

Pressure Relief Education and Training for Wheelchair Users

United States9 participantsStarted 2024-02-01

Plain-language summary

There can be barriers for clients with progressive disorders who are power wheelchair users and their caregivers that prohibit them from performing pressure relief. Clients may struggle with consistent performance of pressure relief and may not recall the importance, have methods to perform, or be able to perform due to weakness or other disease changes.

Who can participate

Age range18 Years

SexALL

See this in plain English?

AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.

Inclusion Criteria: * Adult 18 years or older * Diagnosis of a progressive disorder (amyotrophic lateral sclerosis (ALS), multiple sclerosis (MS), muscular dystrophy (MD), spinal muscular atrophy (SMA), Parkinson disease (PD) * Current clinic client at the Neurology Specialty Care Edgehill clinic * Currently using a complex (group 3) power wheelchair with power positioning of at least tilt/recline * Currently sitting in the chair at least 2 consecutive hours/day Exclusion Criteria: * Dementia as noted by Medical Doctor / speech-language pathologists (SLP) in medical records * Inability/unwillingness to control wheelchair power features (client) * Unwillingness to be monitored, educated, trained by study staff * Uses other mobility devices indoors (scooter, basic power wheelchair) more than complex power wheelchair * Further exclusions may be added in future protocol versions

What they're measuring

Likert Pain Scale Scores

Timeframe: Baseline

Likert Pain Scale Scores

Timeframe: Week 4

Standard Staging for any Pressure Injuries

Timeframe: Baseline

Standard Staging for any Pressure Injuries

Timeframe: Week 4

Trial details

NCT IDNCT06252597

SponsorWake Forest University Health Sciences

Sponsor typeOTHER

Study typeINTERVENTIONAL

Primary completion2024-04-12