CompletedNot Applicable

Building Resilience for Advance Care Planning (ACP) in Chinese Americans

United States125 participantsStarted 2023-11-08

Plain-language summary

The goal of this observational study is to learn about how Chinese Americans engage in advance care planning (ACP) discussions with their family caregivers. The main questions it aims to answer are: 1. How do religious leaders discuss advance care planning and death-related topics with Chinese Americans who are diagnosed with cancer or heart disease in Chicago? 2. Are Chinese Americans living in Chicago ready to participate in ACP discussions with their family? 3. What kind of support and resources are required to engage in end-of-life care discussions among Chinese Americans/immigrants living in Chicago? 4. What do Chinese Americans with cancer, high blood pressure, or heart disease and their family members think about an ACP pamphlet made for Chinese Americans? Participants will share their experience either through interviews or a survey.

Who can participate

Age range

18 Years – 90 Years

Sex

ALL

See this in plain English?

AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.

Group 1 Inclusion criteria for religious leaders: * Age ≥ 18 years of age; * Having served as a chaplain, pastor, or monk at a health care setting or religious organization in Chicago; * Being able to read and respond to questions in English or Mandarin; * Having experience in having end-of-life discussions with Chinese Americans in Chicago. Exclusion criteria: Unwilling to provide consent. Group 2 Inclusion criteria for Chinese Americans living in Chicago: * Age ≥ 18 years of age; * Identifying themselves as first- or second-generation Chinese Americans; * Being able to read and respond to questions in Mandarin or English. Exclusion criteria: Unwilling to provide consent. Group 3 Inclusion criteria for Chinese Americans with experience in end-of-life care discussions: * Age ≥ 18 years of age; * Identifying themselves as first- or second-generation Chinese Americans; * Having experience discussing end-of-life care decisions with others; * Being able to read, write, and respond to questions in either English or Mandarin. Exclusion criteria: Unwilling to provide consent. Group 4 Inclusion criteria for Chinese Americans with cancer, hypertension, or heart disease: * Age ≥ 18 years of age; * Self-identify themselves as first- or second-generation Chinese Americans/immigrants; * Having a diagnosis of chronic diseases, such as cancer, hypertension, or heart disease; * Being able to read and respond to questions in Mandarin; * Being of the non-Hispanic Asian race/ethni…

Questions worth asking your doctor

Bring these to your next appointment. They're a starting point for a shared conversation — not a sign you qualify or a recommendation to enrol.

1Based on my diagnosis and history, is this trial worth exploring for me — or is there a standard treatment we should try first?
2What does this trial's phase tell us about how much is already known about its safety and benefit?
3What would taking part actually involve for me — visits, tests, time, and travel?
4What are the known and possible risks or side effects I should weigh, and how would they be monitored?
5If this trial isn't the right fit, what other options or trials would you suggest I look into?

Generated to help you prepare — always confirm anything about your own eligibility and care with the study team and your doctor.

Questions for the trial coordinator

The trial coordinator is the person who runs the study day to day. These cover the practical side — logistics, costs, and what taking part would actually mean for your life. The study team confirms whether you meet the criteria; these are questions to ask, not a sign you qualify.

1What does taking part actually involve week to week — how many visits, where, and how long does each one take?
2What costs are covered by the study, and what might I have to pay for myself, including travel, parking, or time off work?
3What happens during screening, and what happens if the study team confirms I don't meet the criteria after those tests?
4Who pays for the scans, blood work, and other tests the trial requires — the study, my insurance, or me?
5How will being in the trial affect my regular care, and will my own doctor stay informed and involved?
6Can I leave the trial at any point if I change my mind, and what would happen to my care if I do?

A starting point for the conversation — always confirm anything about your own eligibility, costs, and care with the study team and your doctor.

What they're measuring

Readiness, Support and Resources for ACP Discussions

Timeframe: Immediately at the end of the study

Trial details

NCT IDNCT06247215

SponsorUniversity of Illinois at Chicago

Sponsor typeOTHER

Study typeOBSERVATIONAL

Primary completion2025-12-18

View on ClinicalTrials.gov More Advance Care Planning trials