The objective of this study is to conduct a pilot randomized controlled trial (RCT) of a photo-narrative communication intervention developed by our study team with patients/parents of children with severe neurological impairment (SNI) and their pediatric intensive care unit (PICU) clinicians to assess feasibility, acceptability, and early efficacy.
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Feasibility
Timeframe: enrollment and PICU discharge (assessed up to 4 weeks)
Acceptability
Timeframe: PICU discharge (assessed up to 4 weeks)