CompletedNot Applicable

Mitochondrial Video Assessment Source Material Study

United States28 participantsStarted 2023-06-16

Plain-language summary

Source material collection of videos to develop the Mitochondrial Video Assessment (MVA) for patients with mitochondrial myopathies.

Who can participate

Age range16 Years

SexALL

See this in plain English?

AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.

Inclusion Criteria: * 16 years old and above * Confirmed diagnosis of PMM or PolG * Ability to understand and speak English * Ability and willing to consent * Able and willing to participate and perform tasks while being recorded * Designating a recording partner to assist with video captures is strongly advised, but not required Exclusion Criteria: * N/A

What they're measuring

Source Material Videos

Timeframe: 2 weeks

Trial details

NCT IDNCT06180421

SponsorThe Emmes Company, LLC

Sponsor typeINDUSTRY

Study typeOBSERVATIONAL

Primary completion2024-02-02

View on ClinicalTrials.gov More PolG, Primary Mitochondrial Myopathy trials