Caregivers face many responsibilities outside of their role as a friend or parent, which can lead to emotional, financial, social, and professional challenges. To better understand the impact of MCT8 deficiency on caregivers, Egetis Therapeutics are conducting an online survey for adult caregivers of persons living with the MCT8 deficiency.
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Quantify the economic burden of caring for a patient with MCT8 deficiency using bespoke questions
Timeframe: once, at enrolment
Quantify the cost of caring for a patient with MCT8 deficiency using bespoke questions
Timeframe: once, at enrolment
Quantify the health-related quality of life (HRQoL) burden of caring for a patient with MCT8 deficiency using the EQ-5D-5L
Timeframe: once, at enrolment
Quantify the health-related quality of life (HRQoL) burden of caring for a patient with MCT8 deficiency using the PedsQL
Timeframe: once, at enrolment