RecruitingNot Applicable

Juvenile Recurrent Respiratory Papillomatosis: Establishment of a French National Cohort (PRR : National Cohort " REPA ")

France200 participantsStarted 2022-10-01

Plain-language summary

Recurrent respiratory papillomatosis (RRP) is a rare disease. However, it is the most common benign laryngeal tumor in children. To date, no epidemiological data are available in France. The aim of this study is to establish the epidemiology of juvenile PPR.

Who can participate

SexALL

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Inclusion Criteria: * Patients with juvenile PRR (disease onset before age 18) * Followed in the : * The MALO CRMR * One of the MALO network's CCMRs * One of the main correspondent centers Exclusion Criteria: * Patients objecting to the collection of their personal data * Parents of minor patients objecting to the collection of their child's personal data

What they're measuring

Epidemiology of juvenile RRP in France by clinical information

Timeframe: 10 years

Epidemiology of juvenile PRR in France according to vaccine and adjuvant therapeutic information

Timeframe: 10 years

Epidemiology of juvenile PRR in France by paraclinical information

Timeframe: 10 years

Trial details

NCT IDNCT06000527

SponsorImagine Institute

Sponsor typeOTHER

Study typeOBSERVATIONAL

Primary completion2032-09-30

Contact for this trial

Nicolas LEBOULANGER, MD

0144494682 nicolas.leboulanger@aphp.fr

View on ClinicalTrials.gov More Juvenile Recurrent Respiratory Papillomatosis trials