The main aims of this study are to gather information about how many children, teenagers and adults in Spain have been diagnosed with Dravet syndrome and Lennox-Gastaut syndrome as well as to learn about the number of new Dravet syndrome and Lennox-Gastaut syndrome cases in persons in Spain. Participants' data will be taken from their medical records (charts), which were already collected as a part of their routine care in public hospitals in Spain between 01 January 2021 and 31 December 2022.
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Generated to help you prepare — always confirm anything about your own eligibility and care with the study team and your doctor.
The trial coordinator is the person who runs the study day to day. These cover the practical side — logistics, costs, and what taking part would actually mean for your life. The study team confirms whether you meet the criteria; these are questions to ask, not a sign you qualify.
A starting point for the conversation — always confirm anything about your own eligibility, costs, and care with the study team and your doctor.
One-Year Period Prevalence of DS
Timeframe: Up to 12 months
Incidence of DS
Timeframe: At two different 12 month periods (in consecutive years at Months 12 and 24)
One-Year Period Prevalence of LGS Based on Stricter Diagnosis Criterion
Timeframe: Up to 12 months
Incidence of LGS Based on Stricter Diagnosis Criterion
Timeframe: At two different 12 month periods (in consecutive years at Months 12 and 24)