The ultimate goal of treating children with lower extremity differences is to improve quality of life, optimize function, and maximize participation by addressing the physical, social, and psychological effects of lower extremity differences. In the pediatric field, research has focused on the Body Functions and Structures area of the ICF framework, such as radiographic measurements of limb alignment and length, postoperative complications, and recovery time. Priority targets for children/parents are better captured in the Activity and Participation areas of the ICF framework.
Developed in Canada, the Gait Outcomes Assessment List (GOAL)was created to evaluate outcomes for gait-related interventions for children with cerebral palsy based on a wide range of children's and parents' goals. It was also developed for other childhood conditions associated with lower extremity disorders. The present study aimed to determine the Turkish cultural adaptation, validity, and reliability of the "Gait Outcomes Assessment List for Children With Lower-Limb Difference Parent Version/ Child Version" in Pediatric Rheumatologic Diseases.
Who can participate
Age range
6 Years – 18 Years
Sex
ALL
See this in plain English?
AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Inclusion Criteria:
* Volunteer
* Diagnosed with chronic rheumatological disease
* 6-18 ages
* Have reading and writing skills
* Residing in Turkey
* To have the cognitive skills to understand and answer the questions in the questionnaires
Exclusion Criteria:
* Have had lower extremity surgery in the past 6 months
* Have had lower extremity surgery in the past 6 months
Questions worth asking your doctor
Bring these to your next appointment. They're a starting point for a shared conversation — not a sign you qualify or a recommendation to enrol.
1Since this study is focused on translating and validating a questionnaire called the GOAL-LD into Turkish rather than testing a new treatment, what would my child actually be asked to do if we participated — just fill out surveys and do walking tests?
2The trial also involves a 6-Minute Walk Test and a 10 Stair Climb Test — are these physically demanding enough to be a concern for a child with a rheumatologic disease or lower extremity problem, and would my child need any special preparation?
3The recruitment status for this study is listed as unknown — can you find out whether this trial is still actively enrolling, and if not, are there similar validation studies or assessments we could access another way?
4Since this is a measurement study rather than a treatment trial, would participating give my child access to any clinical assessments or specialist evaluations that could be useful for their current care?
5If the GOAL-LD questionnaire ends up being validated through this study, how might having a reliable Turkish-language gait assessment tool eventually benefit my child's ongoing monitoring or treatment planning?
Generated to help you prepare — always confirm anything about your own eligibility and care with the study team and your doctor.
Questions for the trial coordinator
The trial coordinator is the person who runs the study day to day. These cover the practical side — logistics, costs, and what taking part would actually mean for your life. The study team confirms whether you meet the criteria; these are questions to ask, not a sign you qualify.
1What does taking part actually involve week to week — how many visits, where, and how long does each one take?
2What costs are covered by the study, and what might I have to pay for myself, including travel, parking, or time off work?
3What happens during screening, and what happens if the study team confirms I don't meet the criteria after those tests?
4Who pays for the scans, blood work, and other tests the trial requires — the study, my insurance, or me?
5How will being in the trial affect my regular care, and will my own doctor stay informed and involved?
6Can I leave the trial at any point if I change my mind, and what would happen to my care if I do?
A starting point for the conversation — always confirm anything about your own eligibility, costs, and care with the study team and your doctor.
What they're measuring
1
Gait Outcomes Assessment List for Children with Lower-Limb Difference (GOAL-LD)