CompletedNot Applicable

Care Plans for Cancer Predisposition

United States164 participantsStarted 2023-08-25

Plain-language summary

Develop and evaluate acceptability, feasibility, and preliminary efficacy of digital care plan and accompanying text message reminders for children and adolescents with a known Cancer Predisposition Syndromes (CPS).

Who can participate

Age range12 Years

SexALL

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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.

Inclusion criteria

✓. Parent or Legal Guardian of a patient with a known cancer predisposition syndrome diagnosed within the last 5 years
✓. Received care at the Cancer Predisposition clinic at the Children's Hospital of Philadelphia (CHOP), or other medical institutions (does not need to be receiving follow-up care at CHOP)
✓. Appropriate to approach per oncology team/cancer predisposition team
✓. No cognitive impairment limiting ability to complete measures
✓. Ability to read and speak English fluently
✓. Child proband with a known cancer predisposition syndrome diagnosed within the last 5 years
✓. Ages 12+
✓. Received care at the Cancer Predisposition clinic at the Children's Hospital of Philadelphia (CHOP), or other medical institutions (does not need to be receiving follow-up care at CHOP)

What they're measuring

Change in Knowledge Score of participating family members

Timeframe: 3 months and 6 months after receipt of digital care plan

Trial details

NCT IDNCT05736497

SponsorChildren's Hospital of Philadelphia

Sponsor typeOTHER

Study typeINTERVENTIONAL

Primary completion2025-06-10

View on ClinicalTrials.gov More Genetic Predisposition trials