CompletedNot Applicable

Tourette Discrimination (TD) Stigma Scale

United States43 participantsStarted 2023-03-04

Plain-language summary

The goal of this qualitative study is to understand the challenges of stigmatization and discrimination in children and young adults with Chronic Tic Disorders (CTD), including Tourette Syndrome. Measuring and understanding how stigma affects those with CTD will help inform future work.

Who can participate

Age range8 Years

SexALL

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Inclusion criteria

✓. Physician-confirmed diagnosis of CTD based on the Diagnostic and Statistical Manual for Mental Disorders-Fifth Edition (DSM-V) criteria
✓. 8-30 years old.
✓. Involved in the care of a child, youth or young adult with CTD
✓. The known person with CTD has had tics for more than a year at the time of screening

Exclusion criteria

✕. Non-English speaking
✕. Diagnosis of intellectual disability
✕. Diagnosis of psychosis
✕. Any other condition that, in the Principle Investigator's opinion, would limit the participant's (or parent's) ability to understand study measures.

What they're measuring

Change in Tourette Discrimination-Stigmatization (TD-STIGMA) scores

Timeframe: Month 7

Trial details

NCT IDNCT05696769

SponsorWake Forest University Health Sciences

Sponsor typeOTHER

Study typeOBSERVATIONAL

Primary completion2024-06-27

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