A Survey to Describe the Experience and Unmet Needs of Persons Living With Von Willebrand Disease (VWD) and Their Caregivers

Inclusion criteria: * Phase 1: * Adult participants (age ≥18 years) with severe VWD (self-BAT ≥10) * Participants who have received von Willebrand factor (VWF) treatment, either for on-demand treatment, regular prophylaxis, or situational prophylaxis (e.g., surgery) within the last 5 years * For caregivers: Current caregiver of participants with severe VWD * For caregivers and participants: * Fluent in English or French * Consent to participate in an individual phone interview and to fill self-administered questionnaires * Additional inclusion criteria for virtual focus groups: * Access to technology (Internet and email) * Consent to participate in a virtual focus group with an audio recording of the session. * Phase 2: * Same as above for participants pediatric participants (age \<18 years) with severe VWD (self-PBQ score of ≥3 for at least one symptom). Exclusion criteria: * Phase 1: * Participants or caregivers of participants who do not have severe symptoms of VWD * Pediatric participants (age \<18 years) * Participants who have not received any treatment (on-demand, regular or situational prophylaxis) within the last five years * Participants who are successfully treated with desmopressin or anti-fibrinolytic medications * Participants with inherited or acquired hemostatic or bleeding disorders other than congenital VWD (self-reported) * Participants and caregivers of participants who show cognitive impairment (as assessed by the research nurse at t…