UnknownNot Applicable

Adaption and Testing of the Quality of Life in Short Stature Youth (QoLISSY) Questionnaire for Parents With Children From 0-4

Germany168 participantsStarted 2022-03-01

Plain-language summary

The aim of the study is the adaption, implementation and validation of the instrument for the investigation of the short stature specific quality of life (QoLISSY) for children (age 0-4 years) with achondroplasia (ACH), Small for Gestational Age (SGA) and Growth Hormone Deficiency (GHD) from a parental perspective.

Who can participate

Age range18 Years

SexALL

See this in plain English?

AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.

Inclusion Criteria: * Parents of children aged 0-4 with the diagnosis Achondroplaisa, Short for Gestational Age or Growth Hormone Defiency Exclusion Criteria: * Other diagnosis than Achondroplaisa, Short for Gestational Age or Growth Hormone Defiency * Children older than 4 years of age

What they're measuring

Health related quality of life measured by the adapted version of the QoLISSY questionnaire

Timeframe: June 2022 - March 2023

Trial details

NCT IDNCT05603936

SponsorUniversitätsklinikum Hamburg-Eppendorf

Sponsor typeOTHER

Study typeOBSERVATIONAL

Primary completion2023-09-30

Contact for this trial

Julia Quitmann, Dipl. Psych.

+49 (040) 74 10 52 789 j.quitmann@uke.de

View on ClinicalTrials.gov More Achondroplasia trials