In prior work, this team developed a telehealth primary care model (TIPC), designed in close partnership with patients and clinicians to address a widespread increase in telehealth use during the COVID-19 pandemic. This research team will test the TIPC intervention to assess support for patients among a population of persons with dementia (PwD). Participants will be enrolled in the study for a 12 month period. This study's aims are 1) to explore the impact of the TIPC intervention on patient-important outcomes, engagement with community-based support provided through insurers, advanced care planning (primarily identification of health-care proxy), and patterns of hospice and healthcare utilization in the target population and 2) to evaluate patient, caregiver, and clinical team perspectives of feasibility and acceptability of a TIPC model, and apply findings from this work to the development of a larger randomized control trial designed to assess long-term efficacy of TIPC intervention.
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Change in Goal Attainment
Timeframe: 3 months
Change in Goal Attainment
Timeframe: 6 months
Change in Goal Attainment
Timeframe: 9 months
Change in Goal Attainment
Timeframe: 12 months
Change in Disease-Related Quality of Life
Timeframe: Baseline
Change in Disease-Related Quality of Life
Timeframe: 3 months
Change in Disease-Related Quality of Life
Timeframe: 6 months
Change in Disease-Related Quality of Life
Timeframe: 9 months
Change in Disease-Related Quality of Life
Timeframe: 12 months
Change in Decision-Making
Timeframe: Baseline
Change in Decision-Making
Timeframe: 3 months
Change in Decision-Making
Timeframe: 6 months
Change in Decision-Making
Timeframe: 9 months
Change in Decision-Making
Timeframe: 12 months
Change in Caregiver Support/Burden
Timeframe: Baseline
Change in Caregiver Support/Burden
Timeframe: 3 months
Change in Caregiver Support/Burden
Timeframe: 6 months
Change in Caregiver Support/Burden
Timeframe: 9 months
Change in Caregiver Support/Burden
Timeframe: 12 months