In prior work, this team developed a telehealth primary care model (TIPC), designed in close partnership with patients and clinicians to address a widespread increase in telehealth use during the COVID-19 pandemic. This research team will test the TIPC intervention to assess support for patients among a population of persons with dementia (PwD). Participants will be enrolled in the study for a 12 month period. This study's aims are 1) to explore the impact of the TIPC intervention on patient-important outcomes, engagement with community-based support provided through insurers, advanced care planning (primarily identification of health-care proxy), and patterns of hospice and healthcare utilization in the target population and 2) to evaluate patient, caregiver, and clinical team perspectives of feasibility and acceptability of a TIPC model, and apply findings from this work to the development of a larger randomized control trial designed to assess long-term efficacy of TIPC intervention.
Age range
18 Years
Sex
ALL
See this in plain English?
AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Bring these to your next appointment. They're a starting point for a shared conversation — not a sign you qualify or a recommendation to enrol.
Generated to help you prepare — always confirm anything about your own eligibility and care with the study team and your doctor.
The trial coordinator is the person who runs the study day to day. These cover the practical side — logistics, costs, and what taking part would actually mean for your life. The study team confirms whether you meet the criteria; these are questions to ask, not a sign you qualify.
A starting point for the conversation — always confirm anything about your own eligibility, costs, and care with the study team and your doctor.
Change in Goal Attainment
Timeframe: 3 months
Change in Goal Attainment
Timeframe: 6 months
Change in Goal Attainment
Timeframe: 9 months
Change in Goal Attainment
Timeframe: 12 months
Change in Disease-Related Quality of Life
Timeframe: Baseline
Change in Disease-Related Quality of Life
Timeframe: 3 months
Change in Disease-Related Quality of Life
Timeframe: 6 months
Change in Disease-Related Quality of Life
Timeframe: 9 months
Change in Disease-Related Quality of Life
Timeframe: 12 months
Change in Decision-Making
Timeframe: Baseline
Change in Decision-Making
Timeframe: 3 months
Change in Decision-Making
Timeframe: 6 months
Change in Decision-Making
Timeframe: 9 months
Change in Decision-Making
Timeframe: 12 months
Change in Caregiver Support/Burden
Timeframe: Baseline
Change in Caregiver Support/Burden
Timeframe: 3 months
Change in Caregiver Support/Burden
Timeframe: 6 months
Change in Caregiver Support/Burden
Timeframe: 9 months
Change in Caregiver Support/Burden
Timeframe: 12 months