CompletedNot Applicable

Educational Video for Genetic Testing

United States355 participantsStarted 2021-09-10

Plain-language summary

Develop and evaluate the acceptability, feasibility, and preliminary efficacy of an informational video on paired tumor/normal testing for children and adolescents with a new diagnosis of cancer, tumors or other diagnosis.

Who can participate

Age range12 Years

SexALL

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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.

Inclusion criteria

✓. Parent or Legal Guardian of a patient with a new diagnosis of cancer, tumor, or other diagnosis referred for tumor/normal sequencing (proband) in the Cancer Center at the Children's Hospital of Philadelphia (CHOP)
✓. Able to be approached within 1-4 weeks of tumor/normal sequencing
✓. Appropriate to approach per oncology team
✓. No cognitive impairment limiting ability to complete measures
✓. Ability to read and speak English fluently
✓. Child proband receiving germline testing in the Cancer Center at CHOP
✓. Ages 12+
✓. Able to be approached within 1-4 weeks of tumor/normal sequencing

What they're measuring

Knowledge Score - Before Results

Timeframe: up to 4 weeks after testing

Trial details

NCT IDNCT05472714

SponsorChildren's Hospital of Philadelphia

Sponsor typeOTHER

Study typeINTERVENTIONAL

Primary completion2025-03-22

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