CompletedNot Applicable

Effectiveness of Medical Management of Fibrous Dysplasia of Bone.

France528 participantsStarted 1996-01

Plain-language summary

The objective of our study was to assess the effectiveness of our reference center since its constitution. In a retrospective cohort study, we compared the activity of our center, including the time elapsed between diagnosis and access to the center and the diagnostic delay of patients with fibrous dysplasia between two periods, 1996-2006 (before certification of our center) and 2007-2019 (after certification of our center).

Who can participate

SexALL

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Inclusion Criteria: We have included children and adults with FD/MAS who visited at least once in our center (outpatient and hospitalized patients). The diagnosis was established by an expert of the center, based on clinical, biological, imaging and/or histological arguments Exclusion Criteria: The absence of detectable bone lesion

What they're measuring

to compare time elapsed between first symptomes or discovery of bone lesions and the diagnosis of FD

Timeframe: 1996-2019

Trial details

NCT IDNCT05422833

SponsorHospices Civils de Lyon

Sponsor typeOTHER

Study typeOBSERVATIONAL

Primary completion2019-12

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