The study is the first attempt in post-Soviet Russian history to collect and analyze the existing available data of narcolepsy cohort in order to get prove characteristics of narcolepsy in Russia according to known data. Investigators created the system of national narcolepsy centers in Russia - Russian narcolepsy network, with a purpose of collecting clinical and neurophysiological data with subsequent analyze and formation of Russian narcolepsy profile.
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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
date of birth
Timeframe: during 1-3 years after beginning and when patient and data are available
gender
Timeframe: during 1-3 years after beginning and when patient and data are available
height
Timeframe: during 1-3 years after beginning and when patient and data are available
weight
Timeframe: during 1-3 years after beginning and when patient and data are available
BMI at diagnosis
Timeframe: during 1-3 years after beginning and when patient and data are available
age at EDS (excessive daytime sleepioness) onset
Timeframe: during 1-3 years after beginning and when patient and data are available
age at cataplexy onset
Timeframe: during 1-3 years after beginning and when patient and data are available
frequency of cataplexy attacks at diagnosis
Timeframe: during 1-3 years after beginning and when patient and data are available
ESS score at diagnosis
Timeframe: during 1-3 years after beginning and when patient and data are available
Apnea-hypopnea index (AHI)
Timeframe: during 1-3 years after beginning and when patient and data are available
Periodic leg movements during sleep index (PLMSI)
Timeframe: during 1-3 years after beginning and when patient and data are available
Sleep onset latency at diagnosis
Timeframe: during 1-3 years after beginning and when patient and data are available
Sleep latency
Timeframe: during 1-3 years after beginning and when patient and data are available
Number of SOREM
Timeframe: during 1-3 years after beginning and when patient and data are available
Frequently of sleep paralysis, hypnagogic/hypnopompic hallucinations and poor nocturnal sleep, co-morbidities (sleep-related, somatic or psychiatric) and treatment when available.
Timeframe: during 1-3 years after beginning and when patient and data are available