CompletedNot Applicable

Identification of Modifying Factors in Hereditary Spastic Paraplegia

France311 participantsStarted 2022-10-04

Plain-language summary

A first questionnaire - MODIFSPA conducted in 2014 - identified several environmental factors influencing spasticity in HSP: cold, fatigue, and especially physical activity. In order to improve the care of patients with HSP, The investigator team are looking to deepen the knowledge on physical exercises relieving spasticity as well as to better know the frequency of symptoms requiring additional medical care: fatigue and vesico-sphincter disorders. A new questionnaire was therefore created to collect additional information to optimize the care of patients with HSP.

Who can participate

Age range18 Years

SexALL

See this in plain English?

AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.

Inclusion Criteria: * French-speaking adult patients aware of their PSH diagnosis coming to the genetic consultation at the Pitié-Salpêtrière Hospital or informed via an association / website of the BRAINTEAM study network * Affiliated with social security Exclusion Criteria: * NA

What they're measuring

factors influencing spasticity

Timeframe: 1 day

Trial details

NCT IDNCT05373082

SponsorAssistance Publique - Hôpitaux de Paris

Sponsor typeOTHER

Study typeOBSERVATIONAL

Primary completion2023-10-03

View on ClinicalTrials.gov More Hereditary Spastic Paraplegia trials