Active — Not RecruitingNot Applicable

Community Outreach for Palliative Engagement -- Parkinson Disease

United States632 participantsStarted 2022-04-26

Plain-language summary

The purpose of this study is to learn more about the effectiveness of palliative care training for community physicians and telemedicine support services for patients and carepartners with Parkinson's disease and Lewy Body Dementia (LBD) or related conditions and their care partners. Palliative care is a treatment approach focused on improving quality of life by relieving suffering in the areas of physical symptoms such as pain, psychiatric symptoms such as depression, psychosocial issues and spiritual needs. Telemedicine is the use of technology that allows participants to interact with a health care provider without being physically near the provider.

Who can participate

Age range40 Years

SexALL

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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.

Inclusion Criteria: PATIENT INCLUSION CRITERIA: • Over age 40 years and diagnosed with PD or other causes of parkinsonism, such as progressive supranuclear palsy, multiple system atrophy and Lewy Body Dementia by their community neurologist. Exclusion Criteria: PATIENT EXCLUSION CRITERIA: * Potential patient subjects who are unable or unwilling to commit to study procedures * Presence of additional medical illnesses which requires palliative services (e.g. metastatic cancer) * Already receiving palliative care or hospice services.

What they're measuring

Quality of Life: Alzheimer's Disease (QOL-AD)

Timeframe: 6 Months

Zarit Caregiver Burden Interview short form (ZBI)

Timeframe: 6 Months

Trial details

NCT IDNCT05222386

SponsorUniversity of Rochester

Sponsor typeOTHER

Study typeINTERVENTIONAL

Primary completion2026-09-01

View on ClinicalTrials.gov More Parkinson Disease Dementia trials