The proposed research is consistent with broader public health goals focused on improving communication regarding end-of-life care and the Centers for Medicare and Medicaid Services' (CMS) call for increased patient engagement in advance care planning (ACP) as part of standard care. The proposed study will address this public health issue by developing a communication-based intervention designed to improve Alzheimer's Disease and Related Dementias (ADRD) patients' and care partners' engagement in ACP, distress and care partner burden, and completion of advance directives and receipt of goal-concordant care at the end-of-life. Therefore, this study is aligned with the National Institute on Aging's long-term goal to improve the quality of care for ADRD patients and CMS's goal to increase engagement in ACP.
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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.
Change in advance care planning preparedness, as measured by the Advance Care Planning Engagement Survey: Process Measures
Timeframe: Baseline, Post-Intervention (within 2 weeks), 3-month follow up
Change in patients' engagement in advance care planning, as measured by the Decision Maker subscale of the Advance Care Planning Engagement Survey: Action Measures
Timeframe: Baseline, Post-Intervention (within 2 weeks), 3-month follow up
Change in care partners' engagement in advance care planning, as measured by the Van Scoy and Sudore measure which adapts the Decision Maker subscale of the Advance Care Planning Engagement Survey
Timeframe: Baseline, Post-Intervention (within 2 weeks), 3-month follow up
Change in discussion of advance directives
Timeframe: Baseline, Post-Intervention (within 2 weeks), 3-month follow up
Change in the number of patients who have completed advance directives
Timeframe: Baseline, Post-Intervention (within 2 weeks), 3-month follow up