CompletedNot Applicable

Post-transition Clinical and Socio-professional Future in Adult Patients With Recurrent Multifocal Chronic Osteitis

France16 participantsStarted 2020-10-08

Plain-language summary

Chronic Recurrent Multifocal Osteomyelitis (CRMO) is a rare autoinflammatory bone disease in children. Studies evaluating the quality of life of patients with CRMO are small and heterogeneous. A better understanding of the impact of the disease on the quality of life of adult patients with CRMO beginning in childhood would allow better long-term management of these patients. Our study aims are to assess the clinical and socio-professional outcomes of adult patients who started CRMO at pediatric age.

Who can participate

Age range18 Years

SexALL

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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.

Inclusion Criteria: * Adult Patient with a CRMO with pediatric-onset disease (\> 18years) * Patient who was informed and agreed to participate in this study Exclusion Criteria: * Patients with Monogenic auto-inflammatory disease associated with osteolytic bone lesions (e.g. interleukin-1 receptor antagonist deficiency) * Patient with Majeed syndrome * Patient without sufficient imaging data to confirm the presence of one or more inflammatory lesions * Patients with incomplete data. * Patients placed under legal protection, guardianship or curatorship

What they're measuring

Impact of the disease on the quality of life of adult CRMO patients with pediatric-onset disease.

Timeframe: 20 minutes

Trial details

NCT IDNCT05103137

SponsorHospices Civils de Lyon

Sponsor typeOTHER

Study typeOBSERVATIONAL

Primary completion2020-11-10

View on ClinicalTrials.gov More Chronic Recurrent Multifocal Osteomyelitis trials