This study will implement a new mobile application ('app') called Caremap to improve care coordination for patients with complex health needs. The goal is to pilot test the mobile app with patients/families and clinic doctors to gather input on how well the app works and how to make it better. Investigators plan to enroll up to 40 participants from Duke University for this study. The study is sponsored by Duke's Institute for Health Innovation.
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Implementation feasibility as measured by feasibility intervention measure (FIM)
Timeframe: 6 months
Technical feasibility as measured by proportion of Fast Healthcare Interoperability Resources (FHIR)-enabled data transfer request that were successfully executed
Timeframe: Weekly, up to 6 months
Changes in perceptions of care integration as measured by Pediatric Integrated care survey (PICS)
Timeframe: Baseline, 6 months
Change in parent report of their child's health-related quality of life (HR-QOL), as measured by the PROMIS (7+2) Parent Proxy Global Health Survey
Timeframe: Baseline, 3 months, 6 months
Change in patient-reported health-related quality of life (HR-QOL), as measured by the PROMIS Global Health Survey
Timeframe: Baseline, 3 months, 6 months