The study team will conduct a mixed methods evaluation of the implementation of an evidence-based clinical program -- the Pediatric Complex Care Integration (PCCI) program - for improvement of care integration for children and youth with special healthcare needs (CYSHCN) and children with medical complexity (CMC). The PCCI program is not a discrete intervention itself; rather it is a health system-initiated program that will be implemented as a new standard of care for eligible patients with the intention of improving quality of care, implemented by clinical teams within Duke Health.
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Change in care fragmentation, as measured by the Pediatric Integrated Care Survey (PICS)
Timeframe: Baseline, 6 months, 12 months
Change in child health-related quality of life (HR-QOL), as measured by the PROMIS (7+2) Parent Proxy Global Health Survey
Timeframe: Baseline, 3 months, 6 months, 9 months, 12 months
Change in parent health-related quality of life (HR-QOL), as measured by the PROMIS Global Health Survey
Timeframe: Baseline, 3 months, 6 months, 9 months, 12 months
Change in well-being, as measured by the Well-Being Index (WBI)
Timeframe: Baseline, 3 months, 6 months, 12 months