CompletedNot Applicable

MASCOT Registry of Patients With Myeloproliferative Neoplasms Associated Splanchnic Vein Thrombosis

United Kingdom238 participantsStarted 2019-09-01

Plain-language summary

A registry of UK patients diagnosed to have splanchnic vein thrombosis and myeloproliferative neoplasm, including isolated mutation of JAK2V617f. The purpose of the registry is to understand outcomes, treatment variations and data to inform and enable future clinical trial design and facilitate regulatory approval decision-making.

Who can participate

Age range18 Years

SexALL

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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.

Inclusion Criteria: * Age\>18 years * Myeloproliferative neoplasm (MPN, WHO 2008, WHO 2016, BCSH) and splanchnic vein thrombosis * Isolated Jak2v617f allele and splanchnic vein thrombosis * MPN and portal cavernoma Exclusion Criteria: \-

What they're measuring

transformation of MPN

Timeframe: 5 years

progression of liver disease

Timeframe: 5 years

thrombosis events

Timeframe: 5 years

haemorrhage events

Timeframe: 5 years

Trial details

NCT IDNCT04994158

SponsorRoyal Free Hospital NHS Foundation Trust

Sponsor typeOTHER

Study typeOBSERVATIONAL

Primary completion2023-09-21

View on ClinicalTrials.gov More Myeloproliferative Neoplasm trials