Persons with Alzheimer's disease and related dementias (ADRD) experience behavioral symptoms such as agitation, combativeness, depression, and apathy. These behaviors increase caregiver stress, which leads to negative outcomes, such as poor health, depression, and increased caregiver burden. This project seeks to develop and test an intervention to enhance active caregiver skill training to prepare caregivers to better manage behavioral symptoms in order to improve ADRD caregiver wellbeing. This intervention is called Enhancing Active Caregiver Training (EnACT). The study team will develop and conduct initial testing of EnACT techniques in a small group intervention with family caregivers of persons living with dementia. This intervention will first develop and refine EnACT through small group meetings with ADRD caregivers. Next, EnACT will be tested by two groups of ADRD caregivers in order to assess how achievable and useful caregivers find it to be. In addition, EnACT will be evaluated for its impact on caregiver preparation, stress process, and well-being.
Age range
18 Years
Sex
ALL
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A starting point for the conversation — always confirm anything about your own eligibility, costs, and care with the study team and your doctor.
Imagined Interactions: Specificity
Timeframe: Assessed at six timepoints: baseline (T1), week 2 (T2), week 5 (T3), week 8 (T4), week 11 (T5), and week 14 (T6)
Imagined Interactions: Proactivity
Timeframe: Assessed at six timepoints: baseline (T1), week 2 (T2), week 5 (T3), week 8 (T4), week 11 (T5), and week 14 (T6)
Imagined Interactions: Discrepancy
Timeframe: Assessed at six timepoints: baseline (T1), week 2 (T2), week 5 (T3), week 8 (T4), week 11 (T5), and week 14 (T6)
Capacity to Adapt
Timeframe: Assessed at six timepoints: baseline (T1), week 2 (T2), week 5 (T3), week 8 (T4), week 11 (T5), and week 14 (T6)
Caregiver Capacity to Appraise Demands: Caregiving Burden Subscale
Timeframe: Assessed at six timepoints: baseline (T1), week 2 (T2), week 5 (T3), week 8 (T4), week 11 (T5), and week 14 (T6)
Caregiver Capacity to Appraise Demands: Caregiving Satisfaction Subscale
Timeframe: Assessed at six timepoints: baseline (T1), week 2 (T2), week 5 (T3), week 8 (T4), week 11 (T5), and week 14 (T6)
Caregiver Capacity to Appraise Demands: Caregiving Mastery Subscale
Timeframe: Assessed at six timepoints: baseline (T1), week 2 (T2), week 5 (T3), week 8 (T4), week 11 (T5), and week 14 (T6)
Caregiver Capacity to Appraise Demands: Care Demand Subscale
Timeframe: Assessed at six timepoints: baseline (T1), week 2 (T2), week 5 (T3), week 8 (T4), week 11 (T5), and week 14 (T6)
Caregiver Capacity to Appraise Demands: Caregiving Environmental Impact Subscale
Timeframe: Assessed at six timepoints: baseline (T1), week 2 (T2), week 5 (T3), week 8 (T4), week 11 (T5), and week 14 (T6)