CompletedNot Applicable

Registry to Collect Health Information Related to Fibrolamellar Cancer

United States12 participantsStarted 2021-11-24

Plain-language summary

The purpose of this study is to collect information about people with fibrolamellar cancer (FLC). This study is a registry of people with FLC around the world. This study will involve collecting information about participants, their medical history and the regular medical care they receive for FLC. The study will not provide treatment for your cancer.

Who can participate

Age range13 Years

SexALL

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AI-rewrites the medical criteria so a patient or caregiver can understand them. Always confirm with the trial site.

Inclusion Criteria: * Age 13 years or older. * Personal history of histologically proven fibrolamellar carcinoma (clinical or radiographical suspicion of FLC must be confirmed at MSK or an external hospital) * Participants must have access to electronic devices that meet the following minimum requirements: * Ability to connect to the internet * Capability of running modern internet browers (such as Google Chrome, Internet Explorer, Safari, or Mozilla Firefox). * Participants must have a google account Exclusion Criteria: * Participants residing in the European Union (EU).

What they're measuring

Build a Fibrolamellar Cancer/FLC registry

Timeframe: 18 months

Trial details

NCT IDNCT04874519

SponsorMemorial Sloan Kettering Cancer Center

Sponsor typeOTHER

Study typeOBSERVATIONAL

Primary completion2025-11-10

View on ClinicalTrials.gov More Fibrolamellar Cancer trials