An mHealth Strategy to Improve Medication Adherence in Adolescents With Sickle Cell Disease

Bring these to your next appointment. They're a starting point for a shared conversation — not a sign you qualify or a recommendation to enrol.

1. 1Since this trial has already been completed and was testing whether a medication reminder app called MED-Go was even feasible for teens with sickle cell disease to use, has the app shown enough promise that my care team might consider using it as part of my treatment plan now?
2. 2This study focused specifically on adolescents with sickle cell disease, sickle cell hemoglobin C, or sickle-thalassemia — does my specific diagnosis fit the group that was studied, and does that affect whether the findings might be relevant to me?
3. 3Since the trial was measuring feasibility rather than whether the app actually improved health outcomes like fewer pain crises or hospitalizations, do you know if there are follow-up studies looking at whether better adherence through this app actually leads to measurable health benefits?
4. 4Medication adherence is clearly a challenge for teenagers managing sickle cell disease — are there other tools, programs, or strategies you already recommend for staying on track with medications, especially if this app isn't yet available outside of the study?
5. 5If I or my teen were interested in a technology-based approach to managing medications, would you be able to share what the MED-Go trial found and whether it changed how you counsel patients about adherence support?

Generated to help you prepare — always confirm anything about your own eligibility and care with the study team and your doctor.