Project Talk Trial: Engaging Underserved Communities in End-of-life Conversations
United States1,500 participantsStarted 2022-03-19
Plain-language summary
Compared to the general population, individuals from underserved communities are more likely to receive low quality end-of-life care and unwanted, costly and burdensome treatments due in part to a lack of advance care planning (ACP; the process of discussing wishes for end-of-life care with loved ones/clinicians and documenting them in advance directives).
This study will use existing, trusted, and respected social networks to evaluate two conversation-based tools intended to engage underserved individuals in discussions about end-of-life issue and motivate them to carry out ACP behaviors.
Through this study, investigators will learn how best to engage underserved populations in ACP so as to: 1) increase the likelihood that patients from underserved communities will receive high-quality end-of-life care; 2) address health disparities related to end-of-life treatments; and 3) reduce unnecessary suffering for patients and their families.
Who can participate
Age range18 Years
SexALL
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Inclusion criteria
✓. Ability to recruit 20 individuals from underserved populations to attend a community event
✓. Experience hosting a community event
✓. Experience working with underserved populations
✓. Participation in a series of mandatory live study-related web-based trainings
✓. Completes a research site agreement
✓. Adults over the age of 18 years old in underserved populations
✓. Able to speak and read English and/or Spanish
✓. Have not completed an AD within the previous 5 years
Exclusion criteria
✕. Inability to recruit 20 individuals from underserved populations
✕. Inexperience for hosting a community event
✕
What they're measuring
1
Rates of Completion of a Visually Verified Advance Directive