This trial looks at how well a distress reduction intervention, called "Being Present", works to improve the quality of life of patients with BCR-ABL-negative myeloproliferative neoplasms (MPNs) or chronic phase chronic myeloid leukemia (CP-CML) who are taking tyrosine kinase inhibitors (TKIs) and their caregivers. Mindfulness meditation is the practice of repeatedly bringing attention back to the immediate experience and may help people cope with various types of illness, stress, and worry. This may help patients and caregivers to gradually learn to disconnect from reacting to and dwelling on the past and future and instead fully experiencing the present moment.
Age range
18 Years
Sex
ALL
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Generated to help you prepare — always confirm anything about your own eligibility and care with the study team and your doctor.
The trial coordinator is the person who runs the study day to day. These cover the practical side — logistics, costs, and what taking part would actually mean for your life. The study team confirms whether you meet the criteria; these are questions to ask, not a sign you qualify.
A starting point for the conversation — always confirm anything about your own eligibility, costs, and care with the study team and your doctor.
Frequency of Primary Symptoms
Timeframe: Up to 90 days
Frequency of Participants' Understanding of Hematologic Malignancies
Timeframe: Up to 90 days
Frequency of Participants' Perception of web-based mindfulness meditation
Timeframe: Up to 90 days
Frequency of Reported Barriers of Web-Based Mindfulness Meditation
Timeframe: Up to 90 days
Percentage of patients approached who consent to participate
Timeframe: Up to 90 days
Frequency of Reasons for Ineligibility
Timeframe: Up to 90 days
Frequency of Reasons for Refusal to Participate
Timeframe: Up to 16 weeks
Frequency of Attrition over time
Timeframe: Up to 16 weeks
Frequency of Attrition Causes
Timeframe: Up to 16 weeks
Frequency of meditation practice
Timeframe: Up to 16 weeks
Median duration of meditation practice
Timeframe: Up to 16 weeks
Frequency of playing recorded webinars
Timeframe: Up to 16 weeks
Duration of playing recorded webinars
Timeframe: Up to 16 weeks
Measure of Acceptability using semi-structured interviews
Timeframe: Up to 16 weeks